Living with Lyme Disease
This is my personal story:
I have lived majority of my life healthy. I had the usual childhood diseases but never suffered with anything more than the common cold.
July 10, 2012 at 7.30 PM Changed my life forever. It was at this time that I was in Orlando Florida enjoying a beautiful night fishing at the side of a suburban pond behind the Publix store. What seemed like a tranquil environment there was no way I was prepared for the battle of my life against a tiny tick.
As I went to take a picture of my husband as he brought in a beautiful bass, I decided to walk in the knee high grass to get a better shot. That moment of time caught on camera was also the moment in time that since changed my life.
Even though I did feel something on the back of my leg, I had never had any experience with ticks and also had no concern that my life was going to be in danger from this insect biting me. I thought I had a thorn in my leg and proceeded to remove it. However, I was not successful. I had only removed the back end of the bug, leaving the head embedded and putting my life in jeopardy.
Within 3 days I became violently ill, fever in excess of 102 and a total body ache. We were driving back from Florida to Canada so I had no choice but to lay back and wait until I got home to see a physician. Although I had a rash on the back of my leg, the doctor said he believed it was more allergenic than a bullseye. He also didn't have any clue about tick bites and lyme disease so he treated me with an antibiotic that would not help get rid of the problem.
For 6 weeks I remained ill with a fever and bedridden. I was awake 4 hours per day max but only in 1/2-1 hour time frames. I went back to see him multiple times and his assistant decided to give me a medication that she believed would make me better within 24 hours. This however was not the case, my fever increased and I was taken into the hospital.
I remained in intensive care for 9 days fighting for my life with confirmed Sepsis Meningitis. It took months for me to finally get back on my feet. I had a call from the Pubic health saying that I should hopefully be feeling better soon and I was lucky that I had a false positive lyme test so at least I didn't need to worry about having the disease.
False Positive!!! There was some comfort, but I was still not feeling better and continued on for almost a year unable to properly take care of myself or my family. I never really paid attention to the wording until a year later. False POSITIVE? So it was Positive but someone decided that no they didn't believe it was positive? Who was making that life changing decision?
From that point it was downhill, skin cancer, breast cancer, post sepsis disease, thyroidism and Rheumatoid Arthritis became my life and the fight that I now have on my hands.
Anyone that has suffered a tick bite has the possibility to have to deal with these and more symptoms. Its extremely important that you stand up on your own and question what treatment plan is best for you.
Symptoms of the Disease
Symptoms of Lyme Disease
Lyme is a multiple of symptoms, some people suffer the complete list while others only have a couple of the symptoms.
• Low grade fevers, ‘hot flashes’ or chills
• Night sweats
• Sore throat
• Swollen glands
• Stiff neck
• Migrating arthralgias, stiffness and, less commonly, frankarthritis
• Chest pain and palpitations
• Abdominal pain, nausea
• Sleep disturbance
• Poor concentration and memory loss
• Irritability and mood swings
• Back pain
• Blurred vision and eye pain
• Jaw pain
• Testicular/pelvic pain
• Cranial nerve disturbance (facial numbness, pain, tingling,
palsy or optic neuritis)
Top 4 types of antibiotics
Only a few have proved effective against the bacteria that cause Lyme disease.
According to Deutsche Borreliose-Gesellschaft’s “Diagnosis and Treatment of Lyme borreliosis Guidelines”, The following antibiotics should be considered for proper treatment:
Tetracyclines and gycylcyclines / Macrolides / Betalactams / Nitroimidazoles