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Gluten Intolerance and it's strange symptoms - Personal Experience

Robert Shaw - A loving husband and father of 3 awesome kids. With a passion for Faith, Writing poetry, Technology and Playing Guitar.

Gluten Free Resources

Strange Symptoms

Gluten, what a funny little word. A funny little word that almost ruined my heath.

I grew up in Philadelphia, land of the cheesesteak sandwich and the hoagie. For 35 years I ate a "normal" diet with no known allergies or issues, or so I thought. I have always had knee problems, and a cold beer often would make me feel lousy. Occasionally I would have the 'Trots' after a meal. But all of this was normal, right? Well once I hit my mid-thirties I developed a whole host of strange symptoms. For starters my knee pain got worse and all of a sudden now my shoulder started hurting and clicking. I started developing eye twitching and tremors. Certain foods all of a sudden certain foods would bother me. After eating them they run though me like an Olympic sprinter. After some meals I would feel tired, exhausted and washed out. Heart burn and night reflux started 3-4 nights a week. What was going on? People you say "You are just getting old" or "It happens when you get older".

I decided that it was time to eat healthy. Following conventional wisdom I cut my fat and upped my "Whole Grain". Honestly I felt better for a little while, but then more problems. Rashes started appearing on my face and scalp. I started experiencing frequent headaches, more eye twitching, night sweats started, swollen glands and my personal favorite, a phantom buzzing in my legs like a phone on vibrate.

My wife started to comment that I was becoming irritable and seemed to be angry more frequently and that I looked like hell. My acid reflux went from mild to now starting to vomit in my sleep. You can imagine what being afraid to fall asleep in fear that you may choke to death on vomit at night will do to you. So now add insomnia to the mix.

I stared to slowly develop periods of brain fog and forgetfulness. I would forget complete conversations that happened early that day. I had problems staying focused and concentrating for more than a few minutes. I thought I was dying and no one could tell my why and kept pushing prescriptions on me which did not help.

The Sum of All Evil

Whole Grain Bread = Slow Poison for Some with celiacs

Whole Grain Bread = Slow Poison for Some with celiacs

An Unexpected Break Though

It was around that time that my youngest child started eating solid foods. Soon after starting he quickly developed eczema rashes on his legs, arms and cheeks. These were horrible rashes that no topical cream ever cleared up. Pediatrician kept telling us that this can happen and it should clear up when gets older. Here was my infant son covered in painful itch rashes and no one could tell me why. To me that was not acceptable. I started scouring the internet for a solution. I stumbled upon a few stories of families with similar stories that had success either cutting dairy and/or gluten out of their kid's diet.

Armed with my new internet knowledge I convinced my wife (easily, as she was as frustrated as I was) to place him on an elimination diet for 2 weeks. An elimination diet is complete removal of possible trigger foods for at least 2 weeks. This allows the body to heal from the initial reaction. Once 2 weeks has passed the suspected trigger foods are re-introduced while monitoring for a reaction. In this case we did not need the full two weeks to know that we hit on something. After only three days the rash started clearing up. After two weeks there were only very small patches left. We decided to wait another full week. After that additional week he was rash free.

Since based on our reading that milk was the more likely offender we decided to introduce gluten (Wheat, Rye, Oat Barley) back into his diet first. All it took was one little handful of crackers and the next morning the rash re-appeared in full force on his face.

Armed with this information I started researching wheat allergies and auto-immune wheat intolerance. It was while reading up on Celiac's and Gluten Sensitivity Auto-Immunity issues and stumbled of the phrase that changed my life. "Gluten sensitivity is Genetic, and often a history of problems can be traced thought family medical history"

No it can't be! I have been eating this all my life. A quick re-read of the symptoms list and I had 18 of the 40 listed. Which according to this source if you have 2 it is suspect, 4 or more strong possibility, but 18. I wondered, Could I have this too?

I also compared my family history against the symptoms list. IBS (my mother), Gallbladder Issues (my grandmother) and so on. The symptoms list was like a family history of post dinner digestive woes. I was floored that we could have been quietly destroying out heath all these years and not really knowing it. That quickly changed to feeling encouraged that I might have found a solution to my own strange collection of symptoms. My crazy seemingly un-related issues were all connected. I started a Gluten Free diet the very next day, and while I messed up a few things early on I started to feel better. At first it was subtle, very subtle but each day, each week that progressed I felt a little better.

Today I have been Gluten Free for 3 years. 90% of what I was dealing with is completely gone and the remaining 10% is very mild. I now know when I eat something with gluten as within 24 hours my knees start hurting, my shoulders start hurting and that darn phantom buzzing in my leg starts back up. Luckily things seem to clear up faster then they used to, and I am getting really good at keeping a clean diet. Since then my Mother, after some pushing, has been diagnosed with Celiac's disease, has started a gluten free diet and is feeling healthier than she has in years.

I hope, if nothing else, that my experiences helps someone else figure out that they have a gluten issue and makes a life change that starts healing.

Take Care and God Bless.

For those more technical

A look at what is going on inside

A look at what is going on inside

Known Celiac Symptoms

Celiac Disease Symptoms and Associated Disorders

Below is a list of symptoms from The list is vast and at times overwhelming. Many people will have periodic singular symptoms on their own, I would contact your physician should you develop patterns of multiple symptoms or you medical history is a checklist of the items below. As I mentioned above I had 18 frequent and pronounced symptoms from this list.


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  • Anemia, Folic acid
  • Anemia, Iron
  • Anemia, Vitamin B12
  • Anti-Endomysium Antibodies (EMA)
  • Anti-Gliadin Antibodies (AGA)
  • Anti-Tissue Transglutaminase Antibodies (tTG)
  • Associated Autoimmune Antibodies
  • Bone Alkaline Phosphatase Enzyme, Elevated
  • Calcium, Low
  • Cholesterol, Low (below 156)
  • Coagulation Factors, Low
  • Copper, Low
  • Hemochromatosis
  • Glucose, Low or elevated
  • Homocysteine, Elevated
  • Hyperprolactinemia (elevated prolactin hormone)
  • Hypoprothrombinemia
  • Idiopathic Thrombocytopenic Purpura
  • Liver Enzymes, Elevated
  • Macroamylasemia
  • Macrocytosis
  • Macrolipasemia
  • Magnesium, Low
  • Neutropenia
  • Phosphorus, Low
  • Plasma Proteins, Low
  • Potassium, Low
  • Prolonged Prothrombin Time
  • Transient Erythroblastopenia
  • Zinc, Low


  • Anorexia
  • Appetite, Increased
  • Cachexia
  • Loss of Vitality
  • Obesity
  • Weight Gain, Unexplained
  • Weight Loss, Unexplained


  • Angina Pectoris
  • Aortic Vasculitis
  • Atherosclerosis
  • Hypertension
  • Idiopathic Dilated Cardiomyopathy
  • Nosebleeds, Unexplained


  • Abdominal Pain
  • Adenocarcinoma of the Small Intestine
  • Aphthous Ulcers (Canker sores in mouth)
  • Autoimmune Cholangitis
  • Beta Casein Enteropathy (Cow's dairy intolerance similar to celiac disease)
  • Bleeding, Unexplained
  • Bloating
  • Cancer of the Esophagus
  • Cancer of the Pharynx
  • Candida Infections
  • Carbohydrate Malabsorption
  • Cheilosis (Red lips, cracking/ oozing at corners of mouth)
  • Colitis, Collagenous
  • Colitis, Lymphocytic
  • Colitis, Ulcerative
  • Colonic Volvulus (Loop of intestine twists causing strangulation of intestine)
  • Constipation
  • Constipation Alternating with Diarrhea
  • Crohn's Disease
  • Defective Tooth Enamel (Yellow, white spots, missing enamel)
  • Delayed Gastric Emptying (Early fullness after eating)
  • Diarrhea, acute (Also called celiac crisis)
  • Diarrhea, chronic
  • Duodenal Erosions in the Second Part of Duodenum (Small ulcers)
  • Dysphagia (Difficulty swallowing)
  • Edema of Small Intestinal Lining
  • Esophageal Small Cell Cancer
  • Esophageal Motor Abnormalities (Poor muscle activity/coordination)
  • Gas
  • Gastric Ulcer (Stomach ulcers)
  • Gastric Ulcerations
  • Gastritis, Collagenous
  • Gastritis, Lymphocytic
  • Gastro-Esophageal Reflux Disease (GERD)
  • Gastro-Intestinal Occult Bleeding (Blood in stool that is not visible to naked eye)
  • Gluten Sensitive Enteritis
  • Gums bleeding/ swollen (Purplish in adults/ red in children)
  • Heartburn
  • H. Pylori Bacter (Infection of the stomach)
  • Impaired Gall Bladder Motility
  • Irritable Bowel Syndrome
  • Jejunitis, chronic
  • Lactose Intolerance (Gas, bloating, loose stools from milk)
  • Laryngospasm
  • Leaky Gut Syndrome
  • Lymphoma
  • Malabsorption of Nutrients
  • Maltose Intolerance (Gas, bloating, loose stools from maltose, a simple carbohydrate)
  • Nausea
  • Oral Mucosal Lesions (Mouth lesions)
  • Plummer-Vinson Syndrome
  • Post-cricoid Cancer
  • Primary Biliary Cirrhosis (Bile backs up in liver)
  • Primary Sclerosing Cholangitis (Scarring of bile ducts in liver)
  • Small Bowel Intussusception (One loop of intestine slips into another)
  • Small Intestinal Bacterial Overgrowth
  • Steatorrhea (Pale, smelly, floating stool hard to flush or sticks to toilet)
  • Sucrose Intolerance (Gas, bloating, mucous in stool from sugar)
  • Tongue (Beefy, red, smooth, burning)
  • Tongue (Fiery red, smooth, swollen, sore)
  • Tongue (Magenta, swollen)
  • Tongue (Pale, smooth, burning)
  • Vomiting

Disorders of the glands.

  • Addison's Disease (Adrenal gland failure)
  • Autoimmune Hepatitis
  • Autoimmune Thyroiditis (Hypothyroidism)
  • Diabetes Mellitus Type I
  • Diabetic Instability
  • Gastro-Intestinal Complications of Type 1 Diabetes
  • Grave's Disease (Hyperthyroidism)
  • Hepatic Granulomatous Disease
  • Idiopathic Hypoparathyroidism
  • Non-Alcoholic Fatty Liver Disease
  • Pancreatic Insufficiency
  • Parathyroid Carcinoma
  • Primary Hyperparathyroidism
  • Secondary Hypoparathyroidism


Disorders of antibody production.

  • Allergic Rhinitis
  • Antiphospholipid Syndrome
  • Asthma
  • Autoimmune Disorders in Celiac Disease
  • Autoimmune Disorders in Dermatitis Herpetiformis
  • Autoimmune Polyglandular Syndromes
  • Common Variable Immunodeficiency
  • Food Allergies, IgE and non-IgE Immune Responses
  • IgA Deficiency
  • Sarcoidosis
  • Sjögrens Syndrome
  • Systemic Lupus Erythematosus
  • Urticaria, chronic (Hives)


Disorders of skin, hair, and nails.

  • Alopecia Areata (Patches of hair loss)
  • Alopecia, Diffuse (Balding)
  • Cutaneous Vasculitis
  • Cutis Laxa
  • Dermatitis Herpetiformis
  • Dermatomyositis
  • Eczema
  • Edema (Swelling)
  • Eythema Elevatum Diutinum
  • Erythema Nodosum
  • Follicular Hyperkeratosis (Dry rough skin/ plugged hair follicles on body)
  • Ichthyosis, Acquired
  • Itchy Skin Rash
  • Hangnail
  • Koilonychia (Thin nails that flatten, ends progressively turning up instead of down)
  • Melanoma
  • Nails, Dry and brittle that chip, peel, crack or break easily
  • Nails with Horizontal and Vertical Ridges/Fragile
  • Nail with Rounded and Curved Down Ends, Dark, Dry
  • Nails with White Spots
  • Nails with Splinter Hemorrhages
  • Pityriasis Rubra Pilaris
  • Prurigo Nodularis (Hyde's Prurigo)
  • Psoriasis
  • Scleroderma
  • Seborrhea
  • Thin hair
  • Vitiligo


  • B-cell non-Hodgkin's Lymphoma
  • Cryptic Intestinal T-cell Lymphoma (Refractory Sprue)
  • Enteropathy Associated T-cell Lymphoma (EATL)
  • Extraintestinal Lymphomas
  • Intraepithelial Lymphocytosis in Small Bowel Samples
  • Lymphadenopathy
  • Mesenteric Lymph Node Cavitation
  • Hyposplenism (Atrophy of spleen)


  • Hypokalemic Rhabdomyolysis (Acute, severe potassium deficiency)
  • Muscle Pain and Tenderness
  • Muscle Spasm and Cramps
  • Muscle Wasting
  • Muscle Weakness
  • Osteomalacic Myopathy
  • Polymyositis
  • Tetany


  • Anxiety
  • Apathy
  • Ataxia, Gait Disturbance
  • Ataxia, Gluten
  • Ataxia, Progressive Myoclonic
  • Brain Atrophy
  • Cerebral Perfusion Abnormalities (Poor blood flow)
  • Chonic Fatigue Syndrome
  • Chorea
  • Cortical Calcifying Angiomatosis
  • Dementia
  • Depression
  • Epilepsy
  • Fatigue/ Lassitude
  • Headache
  • Inability to Concentrate
  • Insomnia
  • Irritability
  • Migraine
  • Multiple Sclerosis
  • Nervous System Disorders
  • Peripheral Neuropathy
  • Progressive Multifocal Leukoencephalopathy
  • Schizophrenic Spectrum Disorders
  • Tremors
  • Vasculitis of the Central Nervous System


  • Bronchiectasis
  • Bronchial Pneumonia
  • Idiopathic Pulmonary Hemosiderosis
  • Increased Pulmonary Permeability
  • Increased Susceptibility to Tuberculosis
  • Lung Cavities or Abcess
  • Non-Response to Tuberculosis Treatment
  • Pneumococcal Septicemia


Disorders of sense organ structure and function.

  • Bitot's Spots (Foamy patches on whites of eye)
  • Blepharitis
  • Bloodshot Eyes
  • Blurred Vision
  • Cataracts
  • Keratoconjunctivitis Sicca
  • Keratomalacia
  • Nightblindness
  • Ocular Myopathy
  • Smell, Loss of
  • Taste, Loss of
  • Uveitis, Bilateral
  • Xerophthalmia


Disorders of bone, joints and teeth.

  • Bone Fracture
  • Bone Pain
  • Enteropathic Arthritis
  • Osteitis Fibrosa
  • Osteomalacia
  • Osteonecrosis
  • Osteoporosis
  • Psoriatic Arthritis
  • Recurrent Monoarthritis


  • Hypocalciuria
  • IgA Nephropathy
  • Kidney Stones
  • Urinary Tract Infection


  • Amenorrhea (Absence of menstrual period)
  • Early Menopause
  • Infertility
  • Late Menarche (Late start of menstrual periods)
  • Premenstrual Syndrome
  • Dysmenorrhea (Painful menstrual periods)
  • Dyspareunia (Painful intercourse)
  • Vaginitis


  • Hypogonadism
  • Impotence
  • Infertility
  • Sperm Abnormalities


  • Severe Iron Deficiency Anemia in Pregnancy
  • Short Duration of Breast Feeding
  • Miscarriage
  • Complications During Pregnancy, Labor and Delivery
  • Complications After Childbirth


  • Autism and Learning Disorders
  • Attention Deficit Hyperactive Disorder (ADHD)
  • Cancer Predisposition in Children
  • Chronic Bullous Dermatosis
  • Delayed Puberty in Boys
  • Delayed Puberty in Girls
  • Dermatitis Herpetiformis
  • Developmental Delay
  • Failure to Thrive and Growth Retardation
  • Fecal Occult Blood (Blood found in stool that is not visible to the naked eye)
  • Glycogenic Acanthosis
  • Hypotonia
  • Juvenile Autoimmune Thyroid Disease
  • Juvenile Diabetes Type 1
  • Juvenile Idiopathic Arthritis
  • Abnormal Blood Studies
  • Latent Anemia in Enzymopathies of Small Intestine (Lack of enzymes produced by villi)
  • Penicilllin V Impaired Absorption
  • Refractory Anemia (Unresponsive to iron therapy)
  • Osteopenia
  • Rickets
  • Short Staure
  • Stroke in Childhood


  • Confused/ Faulty Thinking
  • Confabulation
  • Delusions
  • Dementia
  • Disorientation
  • Faulty Learning
  • Hallucination
  • Inattentiveness
  • Loss of Memory
  • Loss of Immediate Memory
  • Poor Memory
  • Reduced Learning
  • Slow Thinking
  • Scattered Thinking

BB's Grocery Outlet

Making Gluten Free affordable - Grocery Outlets

While gluten free living can help you feel better, it can also be a serious drain on your finances. Many times Gluten Free products are 150-200% more expensive than there evil counterparts and often with less product in the package. Our family is now a 100% gluten free household and with five mouths to feed the costs are adding up.

We live in the suburbs of Philadelphia and discovered a chain of scratch and dent stores nearby. These scratch and dent stores are starting to get influxes of Gluten Free products. We were finding products and brands we normally use at prices that were well.. insane.

For example we will normally spend $4.00 on a Gluten Free baking mix. They had the same product with a dented box at BB's for $.75. They had boxes of GFbreakfast cearals for $1.00 a box. I think we pay $1.00 a bowl!!!

At the end of our 1st shopping trip there we spent $110.00, at home we calculated the total value at our normal store to be over $450.00.

So far 99% of what we have eaten from there has been the quality we expect. We now shop there ever moth to stock up on essentials and save that money for vacations.

The chain we use is called BB's near lancaster PA. But search around to see if there is similar in your area, if you find one comment below.

Aldi The grocery chain has come out with a great line of Gluten free food. At last check they had about 20 different product including a good baking and pancake mix. These items are about 70% less than comparable product at larger grocery stores.

Trader Joes Has become a great place to shop Gluten Free without breaking the bank. They offer an ever changing variety of items at prices that won't break your budget.

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  • Curing Heartburn and Acid Reflux
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  • When Gluten Free Fails - Try Paleo
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Gluten Free Foods

Test your Gluten Free Knowledge

For each question, choose the best answer. The answer key is below.

  1. Just because I don't have any symptoms means I am OK!
    • True - Symptom Free is Worry Free
    • False - No trouble can be brewing without me knowing it
  2. The average age of diagnosis in adults is
    • 20
    • 25
    • 35
    • 50
  3. Foods that don't list "Wheat" on the label are safe
    • True: It's all good!
    • False: There are plenty of hidden dangers, do your research!
  4. Once I feel better I can go back to eating Normal
    • No: I will wind up worse than when I started
    • Yes: I can't keep this up forever
  5. My symptoms are caused from
    • Directly from eating Gluten
    • The side effect of malnutrition caused by intestine damage
  6. I can cheat as long as I stay mostly clean
    • Sure - a little bit every once in a while cant hurt
    • Not at all - Even trace amounts can cause a full return of symptoms for weeks
  7. The foods to avoid are:
    • Wheat, Rye, Oats (unless specified Gluten Free) & Barley
    • Wheat, Rice, Beans & Milk
    • Rye, Wheat, Sourgum & Buckwheat
    • All Grains

Answer Key

  1. False - No trouble can be brewing without me knowing it
  2. 35
  3. False: There are plenty of hidden dangers, do your research!
  4. No: I will wind up worse than when I started
  5. The side effect of malnutrition caused by intestine damage
  6. Not at all - Even trace amounts can cause a full return of symptoms for weeks
  7. Wheat, Rye, Oats (unless specified Gluten Free) & Barley

Interpreting Your Score

If you got between 0 and 2 correct answers: You need to learn more

If you got between 3 and 4 correct answers: Your Starting to get this

If you got 5 correct answers: Good Job

If you got 6 correct answers: Excellent

If you got 7 correct answers: You could have written this

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Thank You kindly

© 2013 Robert W Shaw


steve on March 07, 2017:

"always exploring 14 months ago from Southern Illinois

I am gluten intolerant and have many of your symptoms listed. It took me three years to discover what was wrong with me. There are really no stores that offer gluten free foods where I live except Walmart and the cost is horrible. I pay 6$ for a small loaf of bread that's made out of rice and it is not tasty. Thank you for writing this article."

This is exactly the mindset I had when I 1st started gluten free.. I basically felt like I was starving because of the lack of gluten free labelled products and I lost a lot of weight down to an unhealthy 49kg before realising that I don't need to scour the shelves of shops for foods which say gluten free! If you just eat natural foods they are all gluten free anyway! Cheese, Milk, butter, yogurt, ice cream.. Buy steak, chicken, mince if it's 100% ground beef, liver, cod, salmon, tuna, lots of rice and then you've got all the vegetables & fruit, dark chocolate, crisps, cashew nuts, plain peanuts etc.. I buy gluten free self raising flour from Amazon & that really changed things as I can batter various things like tinned corned beef, make battered chicken breasts, chicken pie, meat & potato pie.. There are no limits really & I rarely feel restricted in any way.

Anything you aren't sure on with things like mince just check the label for wheat in case they've added it to bulk it.

I'm just about to have breakfast.. What will I have today.. GF Porridge or Buckwheat Muesli or maybe i'll have Fruit & Yogurt or Cheese on GF Toast.

Carol Morris on December 07, 2016:

Thanks for all that information. What a long and scary list of symptoms. I think I should put my kids, and myself, on an elimination diet too.

Ruby Jean Richert from Southern Illinois on January 05, 2016:

I am gluten intolerant and have many of your symptoms listed. It took me three years to discover what was wrong with me. There are really no stores that offer gluten free foods where I live except Walmart and the cost is horrible. I pay 6$ for a small loaf of bread that's made out of rice and it is not tasty. Thank you for writing this article.

Gin B on September 07, 2014:

THANK YOU for posting this! I started my gluten free journey about a year ago. I knew within 4 days of eliminating it that it was my issue. My life has been changed forever for the better.

I'm thankful for your article because even now when people ask why I don't eat gluten, and I tell them. I get the strangest looks and sometimes start to doubt my decision. This is only because SO many people say that gluten was causing their GI issues.

This was NOT the case for me. Your article has helped me realize that I am not alone in my unusual symptoms. I also began to suffer in my early 30's. Here's the list: muscle pain in shoulders and neck (8 Advil per day minimum), migraines, daily headaches, bloating, knee pain and finger joint pain, any heavy lifting would cause back to go out, numbness and tingling in limbs, extreme exhaustion (no matter how many hours of sleep), restlessness at night, insomnia, heart palpitations, anxiety, forgetfulness, depression, confusion, brain fog, nausea, dizziness, eye twitching, and just like you!!...weird phantom buzzing in alternating parts of my body like a phone on vibrate...pulsating.

I would like to say that the last symptom i listed drove my crazy and started keeping me up at night. The worst part though was that unlike the other symptoms from which I was suffering, NO ONE that I knew could even relate to what I was talking about. I thought I was going crazy! I have tried and tried to find posts or articles on the internet from people with that problem too. This is the first! I'm sorry you were suffering with that. I can TOTALLY relate! I'm glad to know that I'm not alone after all!!

Also, I am happy to say that ALL of those symptoms have disappeared for me. I'm glad that you are feeling better as well!! :)

Shakeel Hussain on August 21, 2014:

I really can't believe that there are so many symptoms. There must be so many people out there suffering without even realising why.

Dave P on August 14, 2014:

Janet, there is no doubt you have celiacs. Irritability and dusty vagina symptoms are common.

So you're one of those helpless cunts that make a fuss out of the dumbest shit? There is no one on earth I hate more.... seriously.

billey larry on June 08, 2014:

My names is Billey Larry, I am from UK., I am here to give my testimony about a doctor who help me in my life. I was infected with HIV virus in the 2013, i went to many hospitals, churches for cure but there was no solution out, so I was thinking how can I get a solution out so that i cannot loose my life, I lost everything I have my husband run away from me and also took my children along because of my sickness. One day I was in the river side thinking the next step to take if it is to jump into the river so that I can loose my life totally or just think where I can go to get solution. so a lady walk to me telling me why am I so sad and i open up all to him telling her my stories, she told me that she can help me out that’s the reason she normally come here to help people so that they can be cured because she was into this problem before, she introduce me to a doctor how cast spells for people and gave me he number and email so i called him and also email him. He told me all the things I need to provide and also give me instructions to take, which I followed properly. Before I knew what is happening he called me and told me that i should go for an HIV test and which i did as he told me and the result was negative. so if you are also heart broken and also need a help you can also email him at; and also contact him at +2349030387805

mr jerry Anderson on June 08, 2014:


I was diagnosed of this HIV deadly disease a friend of mine introduce Dr fadeyi to me and I actually did contact him after he has prepare what he said he will do and he sent it to me and I used it according to his prescription after one week I went to the hospital to check my status again because I was feeling differently from the way I used when I was tested POSITIVE to my greatest surprise the status was NEGATIVE the medical doctors there was surprise and I have to tell the whole world about this if you are still having this similar problem I recommend you to Dr Jerry for you here is his email address:


blessing on May 15, 2014:

Hello my good friends please do not see this strange cause it my life story about my healing, i was having HIV for good 6yrs. Things were not working fine for me due to my health status i know longer have friends know lover it even takes time before my family co-operate with me due to this i tried all possible means i can to get this devilish sickness out of my body i went to hospitals hierarchies and other heath organization but all remains the same still yet i never gave up cos i was not born with this illness so i decided to take it over to the internet to see if i could get remedy, on my search i saw a testimony of a woman, she said she was also having a terrible sickness for over 3yrs but now she is healed i was surprise at first when i saw her test so she wrote a name dr EHIAGHE and also gave his email id so i mailed them which is ( i told them about my problem and after the processes he told me that am healed but i never believed he told me to go and confirm it from the hospital were i have been taking treatment still i never believed also although he gave me evidence that the sickness was gone.

Finally i decided to go for check up and to my surprise my doctor said the sickness was know longer there with thought of joy i started shearing tears.

My friends today am now married bless with 2kids, so if you have any sickness kindly email ( sir i will forever remain in you debt.

Thank you sir am grateful.

T Jesh on May 10, 2014:

Thank you very much for taking the time to explain your experiences, they were really helpful. I have recently been diagnosed with Celiac Disease, and I am having a hard time adjusting. It's interesting what you said about your son, because my daughter has had little bumps all over her that have bothered her since she was little, the doctor says that they are keratin follicles, after reading your post I think that she too has this allergy...

Can you recommend any Android Apps for Gluten, or restaurants that you have found are acceptable to Gluten Free?

Thank you again and God Bless to you & your family as well.


Carrie Lee Night from Northeast United States on May 09, 2014:

Interesting article :) Thank you for taking the time to write this hub. I am happy to hear you and you family are feeling better off the gluten. Have a wonderful week.

DetoxMama on April 01, 2014:

While some of the details are a little dif (I love the word "fave", btw. Pfff.), this story is pretty much a page out of my playbook. Hit 30s and all these things started happening. Looking back, there were always little issues here and there, things you just thought were normal. Stumbled on an elimination diet b/c after having a baby, I just wasn't regaining a sense of normalcy - felt horrible from lethargy, to brain fog, to muscle pains, joint pain, feeling blue, excess weight that would just not budge, etc, etc, etc. I too, just like you, thought dairy would be the culprit; I had heard about the dairy/inflammation connection. Lo and behold gluten was a major player for me! And dairy to a lesser extent. And maybe some other things to which I'm currently working on figuring out. But within a few months of cutting gluten and dairy, I lost weight, I felt better, stronger, more rested, less aches and pains, sinus issues gone. The list goes on. I document that story and my subsequent journey here: Journey on, brother! It's good, good stuff you've stumbled on. It's a shame we have to unearth it ourselves and/or pay a small fortune to integrative doctors who don't take insurance. But to that I say, thank god for the internet and common sense!

Evelyn on March 22, 2014:

Thank you for your article, it was very thorough.

To Janet, my Father always taught me,

(If you don't have something nice to say, DON'T SAY ANYTHING AT ALL!!!)

My 22yr old sons bloodwork was all neg for Celiacs. Thank god his doctor ignored it!! He had an endoscopy and the doc did some biopsies and they were all positive for Celiacs. His insides were a mess. Myself and other children were tested after that and we all tested negative, yet we all have many of the symptoms of Celiacs. After reading your article I have decided its time to try a gluten free diet even though I tested negative. I have many of the symptoms and I'm curious to see if they will go away once I cut gluten out of my diet.

Thanks again for your story!!

Madhuri on March 07, 2014:

Thanks a lot for this very helpful article. My problem is similar to yours. I was all fine till 30 yrs. After i gave birth to my first child, travelling across globe.. especially cold countries..eating food which i am not used to...changed my life for ever. It is so frustrating rashes are on & off. Its by the time first rash heals second one will start. Never ending. Finally i started elimination method. I came to know i am gluten intolerant. I stopped eating those foods which contain gluten. but sadly...there are other foods am not tolerant either. Still in process of finding .....its really frustrating. I have hypothyroid. I shouldn't eat certain foods...need to exercise....minimize stress...take rest...ohh long list. Once again, thanks for the article

Katy on March 01, 2014:

Janet can't punctuate, either.

Ashley on February 27, 2014:

I agree with Kristy.

Janet is an ignorant person, the content of this article is what is most important. Thank you for taking the time to share you experience which will result in helping others!

Kristy K. James on February 26, 2014:

I'm sorry there are people who have to focus more on typos than they do on content. As a professional writer, I understand that typos don't define a person, or their level of intelligence. In fact, in the grand scheme of things, typos rate pretty low on the list of things I worry about. That said, thanks so much for sharing your experience. As someone who had to give up gluten almost a year ago, I find it helps me to stay on track when I see what others have gone through. Glad you were able to find out what was making you and your son so sick. :)

LauraMCP on February 17, 2014:

Add Your Comment..

After a lifetime of panic/anxiety attacks that would happen for no logical reason, mouthsores that would come & go, knee pain, pain in finger joints, never being able to "wake up" in the morning regardless of amount of sleep, brain fog, being unusually hungry regardless of diet/vitamin supplementation I finally found out at age 44 that I am gluten intolerant. Suffered from chronic diarrhea for 3 years, lactose intolerance that went away 5 mos after going gluten free. Also had repeated miscarriages in my 30s and infertility, I never carried a pregnancy longer than 2 mos. I am still healing duodenal ulcers and sensitive to cornstarch and bread yeast for some reason, but otherwise doing much better. More of us need to share our experiences, there are many children and adults suffering needlessly.

Robert W Shaw (author) from Collegeville, Pennsylvania on January 06, 2014:


I appreciate the honest critique. As you suggested in your comment, the article was written with a mindset of helping people who struggled as I did trying to figure out what is happening with their health. You are correct the issue list is the current one from and they are given credit in that section of the article. I only hope that others find that list in some form and start on the path to healing.

janet on December 30, 2013:

Really hard these days to take anything seriously when spell check isn't a priority, what's a "fave"? And we all know you mean "certain foods", not "certain fools", but still, change it. Your article is well written, and obviously means a lot to you and you want to help others. I'm sure you cut and copied a lot of those issues related to Celiac Disease from other educational areas online. I wanted to read what you had written due to the fact that I have been experiencing some of these same symptoms. But please, edit your work, especially when it comes to spelling...because most of your reading audience will judge the authenticity of your article based on little things, like spelling. Accurate spelling doesn't always equal an accurate article...but people should take your experiences seriously.

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